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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Proposal to host the IF 32nd International Conference on Spina Bifida and Hydrocephalus in 2028

Several IF member associations have expressed interest in hosting the 32nd International Spina Bifida and Hydrocephalus Conference in the fall of 2028. If your organisation is chosen to host the IF conference 2028, the IF Board of Directors will work closely with you to ensure smooth planning of the conference. We need some information from you to ensure that we can make the best choice of a host.

Strategic engagement with the Global Disability Inclusion Report

From 4 to 8 April 2025 in Berlin, the International Disability Alliance (IDA) held a workshop for facilitators from IDA member organisations to support strategic engagement with the Global Disability Inclusion Report - a significant knowledge product from Global Disability Summit 2025 - and to equip Organisations of Persons with Disabilitiies (OPDs) in order to facilitate dialogue at national and regional levels

Draft WHA Resolution on ‘Rare diseases: a global health priority for equity and inclusion’ is now approved 

Building on our previous successes in rehabilitation and prevention through food fortification, IF is pleased to see the adoption of the WHA Resolution on Rare Diseases. As a global community, we can look forward to the forthcoming actions by Member States to translate its commitments into meaningful change.

WHA78: Accelerating Action on Micronutrient Deficiencies and Their Consequences, Including Spina Bifida

On the occasion of the 78th World Health Assembly, held in Geneva from May 19 to 27, 2025, IF, together with UNICEF, Global Alliance for Improved Nutrition (GAIN), Global Alliance for Prevention of Spina Bifida (GAPSBiF), Food Fortification Initiative (FFI), Future Fortified, The G4 Alliance, Iodine Global Network, Micronutrient Forum, Nutrition International, and World Food Programme, organised the side event ‘Accelerating Action on Micronutrient Deficiencies and Their Consequences, Including Spina Bifida: Delivering on WHA 76.19 through Large-Scale Food Fortification’.

We’re Hiring: Join the International Federation for Spina Bifida and Hydrocephalus!

IF is expanding its team! We are currently looking for two passionate and skilled professionals to support our growing international programs.

The Global Disability Summit 2025 Concludes

The Global Disability Summit (GDS) took place in Berlin from 2 to 3 April 2025, bringing together governments, civil society organisations, and international stakeholders to strengthen the inclusion of persons with disabilities in global development and humanitarian cooperation. The Global Disability Summit 2025 Concludes: IF Launches the Kuala Lumpur Declaration and Supports the Adoption of the Amman-Berlin Declaration on Global Disability Inclusion. Read the article here.

Lessons Worth Sharing from the Bridge CRPD-SDGs ASEAN Training

Held in Bangkok, Thailand, in February 2025, the Bridge CRPD-SDGs ASEAN training is an outstanding capacity-building program that convenes disability rights advocates, activists, and professionals from across Southeast Asia.

EU CRPD review: Stronger EU action required to advance disability rights

Held on 11–12 March 2025, the European Union (EU)’s review by the United Nations Committee on the Rights of Persons with Disabilities (CRPD Committee), was a crucial moment for the protection of the rights of persons with disabilities in Europe. The result of the review is an evaluation report known as the ‘Concluding Observations’.

International Women’s Day 2025 Webinar ‘Accelerate Action!’

On 7 March 2025, IF in collaboration with the Spina Bifida and Hydrocephalus Association Malaysia (SiBIAM), the European Federation of Hard of Hearing People (EFHOH), the European Network on Independent Living (ENIL), the Spina Bifida Federal Association Sudan, and the World Federation of the Deafblind (WFDB), organised the International Women’s Day Webinar ‘Accelerate Action’.