15 July 2025
The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity.
10 July 2025
Warsaw, 30 June 2025 – In a strong show of solidarity and commitment to the rights and inclusion of persons with disabilities, a Declaration supported by 25 EU Member States was prepared during the Polish Presidency of the Council of the European Union.
13 June 2025
IF welcomes the WHO Consultation for the updated version on the Assistive Products Priority List (APL), in particular that it acknowledges catheters, and related accessories, as essential assistive products for persons living with Spina Bifida and Hydrocephalus (SBH).
4 June 2025
Several IF member associations have expressed interest in hosting the 32nd International Spina Bifida and Hydrocephalus Conference in the fall of 2028. If your organisation is chosen to host the IF conference 2028, the IF Board of Directors will work closely with you to ensure smooth planning of the conference. We need some information from you to ensure that we can make the best choice of a host.
26 May 2025
From 4 to 8 April 2025 in Berlin, the International Disability Alliance (IDA) held a workshop for facilitators from IDA member organisations to support strategic engagement with the Global Disability Inclusion Report - a significant knowledge product from Global Disability Summit 2025 - and to equip Organisations of Persons with Disabilitiies (OPDs) in order to facilitate dialogue at national and regional levels
24 May 2025
Building on our previous successes in rehabilitation and prevention through food fortification, IF is pleased to see the adoption of the WHA Resolution on Rare Diseases. As a global community, we can look forward to the forthcoming actions by Member States to translate its commitments into meaningful change.
22 May 2025
On the occasion of the 78th World Health Assembly, held in Geneva from May 19 to 27, 2025, IF, together with UNICEF, Global Alliance for Improved Nutrition (GAIN), Global Alliance for Prevention of Spina Bifida (GAPSBiF), Food Fortification Initiative (FFI), Future Fortified, The G4 Alliance, Iodine Global Network, Micronutrient Forum, Nutrition International, and World Food Programme, organised the side event ‘Accelerating Action on Micronutrient Deficiencies and Their Consequences, Including Spina Bifida: Delivering on WHA 76.19 through Large-Scale Food Fortification’.
7 May 2025
IF is expanding its team! We are currently looking for two passionate and skilled professionals to support our growing international programs.
15 April 2025
The Global Disability Summit (GDS) took place in Berlin from 2 to 3 April 2025, bringing together governments, civil society organisations, and international stakeholders to strengthen the inclusion of persons with disabilities in global development and humanitarian cooperation. The Global Disability Summit 2025 Concludes: IF Launches the Kuala Lumpur Declaration and Supports the Adoption of the Amman-Berlin Declaration on Global Disability Inclusion. Read the article here.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
