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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Guidelines for the care of people with spina bifida

A special release took place on World Spina Bifida and Hydrocephalus Day: 25 Guidelines to help improve spina bifida care around the world!

Raising the voices of people with spina bifida and hydrocephalus

Today is the 7th World Spina Bifida and Hydrocephalus Day! Join the conversation on social media to help raise awareness!

Report of the Special Rapporteur on the rights of persons with disabilities

The Special Rapporteur on the rights of persons with disabilities examines the challenges experienced by persons with disabilities in the enjoyment of their right to the highest attainable standard of health

Final report on 'My Rights' training

From 5 to 7 October we were in Lisbon for a training promoting the rights of young people with spina bifida and hydrocephalus. Take a look at the report and the video we realized about the training!

IF expert Steven Schiff wins award for research on preventing infections

We congratulate on IF expert and friend Steven Schiff, who received a prestigious award for his work on predictive models for the personal treatment of infectious diseases, which lead to high risk of hydrocephalus.

World Mental Health Day

Today is the World Mental Health Day and, as every year, IF commemorates this day. We took part in an EU event and published some interesting material on our social media channel!

"My Rights" training in Lisbon

This Friday IF is going to Lisbon for a youth training called "My Rights: independent living, activism and participation for young people with spina bifida and/or hydrocephalus"!

We need a strong European Accessibility Act and we need it now!

The European Commission’s proposal for a European Accessibility Act was published in 2015. We are tired of waiting for its adoption!

WSBHD18 social media toolkit

Check out our World Spina Bifida and Hydrocephalus Day 2018 social media toolkit to learn how you can help to raise awareness on October 25!