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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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In Memoriam: Thomas (Tom) Edmund Baroch, disability advocate

The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch

Mirela Bukovac at the Eurochild Conference 2018

IF Youth Group member Mirela participated at the Eurochild Conference 2018, "Building a better Europe with children: All aboard!"

The Global Prevention Initiative celebrates 2nd anniversary

On Sunday, October 28th the IF Global Prevention Initiative (IFGPI) celebrates its second anniversary. Read the full press release to know more about IFGPI activity so far!

Guidelines for the care of people with spina bifida

A special release took place on World Spina Bifida and Hydrocephalus Day: 25 Guidelines to help improve spina bifida care around the world!

Raising the voices of people with spina bifida and hydrocephalus

Today is the 7th World Spina Bifida and Hydrocephalus Day! Join the conversation on social media to help raise awareness!

Report of the Special Rapporteur on the rights of persons with disabilities

The Special Rapporteur on the rights of persons with disabilities examines the challenges experienced by persons with disabilities in the enjoyment of their right to the highest attainable standard of health

Final report on 'My Rights' training

From 5 to 7 October we were in Lisbon for a training promoting the rights of young people with spina bifida and hydrocephalus. Take a look at the report and the video we realized about the training!

IF expert Steven Schiff wins award for research on preventing infections

We congratulate on IF expert and friend Steven Schiff, who received a prestigious award for his work on predictive models for the personal treatment of infectious diseases, which lead to high risk of hydrocephalus.

World Mental Health Day

Today is the World Mental Health Day and, as every year, IF commemorates this day. We took part in an EU event and published some interesting material on our social media channel!