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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Youth conference on sexuality coming soon!

The IF Youth Group has organised an international event on sexuality and body awareness that will take place on October 5-6 in Varese (Italy).

2019 World Spina Bifida & Hydrocephalus Day: 'The Full Picture' campaign

There are 3 months left until WSBHD 2019 so we are getting ready to celebrate it together with IF's 40th anniversary. Join us!

IF survey on ageing available in 12 languages!

The survey is now available in English, Dutch/Flemish, French, German, Italian, Norwegian, Portuguese, Romanian, Slovak, Spanish, Swedish and Turkish

IF represented at the EPF STYPA!

IF participated at EPF STYPA 2019 edition organised in Vienna from 7-10 July 2019! The main focus was on ethical dilemmas and evolution of patient advocacy.

UK consultation on proposal to introduce mandatory fortification of flour with folic acid

The UK Government asks for people's views on whether flour millers should be required by law to add folic acid to flour to help reduce the incidence of neural tube defects

Joint statement on the Right to Family of children without parental care

In a joint statement, 11 disability rights and children's rights organisations emphasise the right to family and make recommendations to the UN General Assembly

IF joins Global WHO Birth Defects Technical Working Group

IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally

IF presents its Annual Report 2018

IF is happy to publish its 2018 Annual Report, featuring IF activities and projects which were only made possible thanks to the collaboration of our members, partners and friends all over the world. 

Applications now open for IF's 4th "My Rights" Youth Training

We are looking for young people (18-35) living with SBH in Europe who want to become more self-confident and independent!