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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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2020 WORLD FOLIC ACID AWARENESS WEEK STARTS TODAY!

The 2020 WFAAW is celebrated from 6th - 12th January and it marks the 4th anniversary of this global event initiated by IF in 2017.

Towards a new European Disability Strategy for 2020 - 2030

The next EDS is key for people with spina bifida and/or hydrocephalus so we encourage you to read IF recommendations for an ambitious and strong disability strategy

Discussion on the next EU Disability Strategy at the European Parliament

Discussion at the European Parliament plenary session on the EU disability strategy post-2020. Commissioner Helena Dalli, responsible for Equality, answered questions from MEPs

UN Human Rights Day: IF launches sexuality project resources

After more than 1 year of work, the Youth Group is ready to launch the IF webpage with information about the project on sexuality and body awareness and the first general report of the survey launched in January 2019. This is about human rights!

IF calls on the EPSCO Council: a swift transposition of the Work-Life Balance Directive is needed!

The WLB Directive is key for families who have members with SBH, the EPSO Council and the EU Member States should swiftly and fully transpose the directive

IF participation at the EDPD event in Brussels

Staff members, youth representatives from different countries, Board member... IF was very well represented at the European Days of Persons with Disability which took place in Brussels on 28-29 November

European Days of Persons with Disabilities 2019: launch of SkixAll guidelines

Today the partners of the SkixAll project launch the final outcome: the guidelines for training teachers and coaches in ski activities for persons with disabilities.

World Toilet Day: experiences from the spina bifida community

Why is this day important for persons with spina bifida? Take a look to the testimonies and share IF's call to the European institutions to implement access to toilet and sanitation material for all and as a human right

Share your opinion on the European Disability Strategy today

As the European Disability Strategy will end in 2020, the European Commission is evaluating its implementation and welcomes your feedback. Make your voice heard by 13 November 2019!