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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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UN Human Rights Day: IF launches sexuality project resources

After more than 1 year of work, the Youth Group is ready to launch the IF webpage with information about the project on sexuality and body awareness and the first general report of the survey launched in January 2019. This is about human rights!

IF calls on the EPSCO Council: a swift transposition of the Work-Life Balance Directive is needed!

The WLB Directive is key for families who have members with SBH, the EPSO Council and the EU Member States should swiftly and fully transpose the directive

IF participation at the EDPD event in Brussels

Staff members, youth representatives from different countries, Board member... IF was very well represented at the European Days of Persons with Disability which took place in Brussels on 28-29 November

European Days of Persons with Disabilities 2019: launch of SkixAll guidelines

Today the partners of the SkixAll project launch the final outcome: the guidelines for training teachers and coaches in ski activities for persons with disabilities.

World Toilet Day: experiences from the spina bifida community

Why is this day important for persons with spina bifida? Take a look to the testimonies and share IF's call to the European institutions to implement access to toilet and sanitation material for all and as a human right

Share your opinion on the European Disability Strategy today

As the European Disability Strategy will end in 2020, the European Commission is evaluating its implementation and welcomes your feedback. Make your voice heard by 13 November 2019!

Report IF EU Workshop in Ghent

The second IF EU Workshop of 2019 took place in Ghent on 25-26 October, where we could celebrate the WSBHD together with our members. Read here about the main topic of the event!

New members and Board members at IF

IF welcomes two new Board members and three new IF members from Malawi, Uganda and Kazakhstan. Now we count with 68 members at the IF's family!

WSBHD 2019 #TheFullPicture campaign

On October 25 we celebrate World Spina Bifida and Hydrocephalus Day with the aim of raising awareness, improving understanding about Spina Bifida and Hydrocephalus, and advocating for the rights of persons with these conditions