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The IF members training “From local to global - how to influence international actions through national advocacy” taking place on May 6 2022 provided an overview of key concepts and processes of international organisations.

IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.

On October 25th 2021, the International Federation for Spina Bifida and Hydrocephalus together with worldwide members will celebrate the World Spina Bifida and Hydrocephalus Day 2021 (WSBHD21) under the theme “Unlock Your Rights to Health”. IF facilitates dialogues and exchanges of best practices among IF Member Associations around the world to optimise the dissemination of information and campaigns on digital platforms.  Especially for the WSBHD21, IF organises a side event on Communication: ‘From Traditional to Digital - Unlock Your Digital Communication’ to which all Communications Coordinator of Member Associations are exclusively invited.

IF reflects on the WSBHD 2020 - The World Spina Bifida and Hydrocephalus Day (WSBHD) on October 25 is a very special highlight on our International agenda. It gives us the opportunity to raise awareness on SBH and share our stories with our stakeholders.

IF is happy to publish our Annual Report 2019! You will learn about IF's projects and our members' achievements. Last year was IF's 40th anniversary so it definitely was a very important year for the SBH community.

IF is very happy to welcome our new Secretary General. From June 1, we count with Dr. Sylvia Roozen to lead IF into the future together with the whole team!