Latest news Ageing (12) Community Building (50) Developing Countries (22) Europe (65) Human Rights (102) Hydrocephalus (53) International Solidarity (28) Network Development (55) Prevention (56) Right to Health (64) Sexuality (7) SkiForAll (4) Spina Bifida (72) Vacancy (3) WSBHD (20) Youth (23) 28 February 2019 #ShowYourRare for Rare Disease Day 2019! For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus! Read more 25 February 2019 IF Secretary General advocates for rare diseases at UN IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF. Read more 6 November 2018 In Memoriam: Thomas (Tom) Edmund Baroch, disability advocate The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch Read more 25 October 2018 Raising the voices of people with spina bifida and hydrocephalus Today is the 7th World Spina Bifida and Hydrocephalus Day! Join the conversation on social media to help raise awareness! Read more 28 June 2018 IF's Annual Report 2017 is out now! The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years. Read more 30 May 2018 BethanyKids’ Mobile Clinic in Kenya helps thousands of children with disabilities To learn how the BethanyKids' Mobile Clinic operates in Kenya, you can now watch a short video documentary. Read more Previous Page Next Page