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The 30th International Conference on Spina Bifida and Hydrocephalus, convened in Kuala Lumpur from October 24th to 26th, resulted in a historic declaration that calls for global action to improve the prevention of Neural Tube Defects (NTDs) and ensure continuous, coordinated, and inclusive multidisciplinary care for individuals affected by spina bifida and /or hydrocephalus (SBH) throughout all stages of life, from childhood to adulthood. Join the action to co-sign the Kuala Lumpur Declaration.

In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.

Victorial Sandoval is the new President of The International Federation for Spina Bifida and Hydrocephalus.

In this article the IF President Cato Lie interviewed paralympic gold medalist Jesper Pedersen. In the interview Cato and Jesper talked about the barriers and opportunities to achieve their ambitions and live a fulfilling life with SBH. A topic which is worth reading by both people with SBH and those without. The interview includes advice for people with SBH and demonstrates the physical and social barriers which they have encountered. Barriers which society as a whole needs to recognise and dismantle.

The WSBHD23 Conference brought together global communities to raise awareness about Spina Bifida and Hydrocephalus. IF members from the regions Africa, Americas, Asia-Pacific, and Europe shared their vision of “Accessibility4All” for this year’s WSBHD23! 

It is a real pleasure to share with you the third newsletter of the year 2023. With this newsletter, we, together with YOU, look back to an active first half year, especially with respect to IF General Meeting and several high level events such as the adoption of the WHA76.19 Resolution and the 16th Session of the Conference of States Parties to the CRPD.