IF survey on ageing available in 12 languages!

29 July 2019 // In June, we launched our European survey on Ageing with Spina Bifida and Hydrocephalus and immediately started receiving a lot of responses. This clearly is a topic that many adults with spina bifida and hydrocephalus (SBH) can relate to. We are extremely grateful to everyone who has already participated and shared their views and experiences!

Today, nearly 500 people with SBH in Europe responded to the survey, yet we want to make sure answers represent the entire European SBH community as best as possible. With the invaluable support of our members, the survey is now available in 12 languages: English, Dutch/Flemish, French, German, Italian, Norwegian, Portuguese, Romanian, Slovak, Spanish, Swedish and Turkish!

The survey is aimed at people who self-identify as ageing with SBH, age 35 and beyond. Deadline for responses is 30 September 2019.

We need your support to collect as much information as possible from adults with SBH in all parts of Europe. Please share the survey on social media, in SBH associations, SBH clinics, with healthcare providers, and in relevant groups and forums!