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IF, together with five other organisations working in disability rights, sent an open letter to the Romanian government expressing grave concerns about the violations of human rights of young persons with disabilities in Romanian institutional care.

During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.

IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).

On 18-19 May, IF was in Belgrade for its first European workshop of 2019. Prevention, human rights, sexuality and ageing with SBH were some of the topics addressed during this intensive workshop!

IF is very happy to announce that our Secretary General has been re-elected in the Boards of Directors of EURORDIS, which is now focusing on promoting holistic care for people living with rare diseases all over Europe.

Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.