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World Toilet Day: experiences from the spina bifida community

Why is this day important for persons with spina bifida? Take a look to the testimonies and share IF's call to the European institutions to implement access to toilet and sanitation material for all and as a human right

IF responds to UN Special Rapporteur questionnaire on bioethics and disability

IF describes how the negative perception of disability has influenced strategies and policies related to prenatal screening, abortion and euthanasia

IF analysis on the new European Commission

IF has developed an analysis on which new commissioners are key for the spina bifida and hydrocephalus community. Take a look!

Youth conference on sexuality coming soon!

The IF Youth Group has organised an international event on sexuality and body awareness that will take place on October 5-6 in Varese (Italy).

IF survey on ageing available in 12 languages!

The survey is now available in English, Dutch/Flemish, French, German, Italian, Norwegian, Portuguese, Romanian, Slovak, Spanish, Swedish and Turkish

IF Survey: What does ageing with SBH mean to you?

Contribute to our exploratory European study on ageing with spina bifida and hydrocephalus!

IF advocates for birth registration at 12th COSP

On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.

Former Norwegian Minister and disability advocate Guro Fjellanger has passed away

Former Environmental Minister Guro Fjellanger, born with spina bifida, passed away much too soon at the age of 55.

Survey on pregnancy outcomes in women with spina bifida

Researchers at the Sunnybrook Research Institute in Canada have created a survey on pregnancy complications and outcomes in women with spina bifida.