25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.
13 February 2019
The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard!
31 January 2019
2019 marks the 10-year anniversary of the Smarter Futures partnership in which Nouryon collaborates with the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International (HKI), and the Food Fortification Initiative (FFI) to improve and increase availability of fortified wheat, maize flour and rice that meets quality and nutrition standards in Africa.
20 November 2018
We were in Madrid this November for our European Workshop, this year focused on continence management and ageing with spina bifida and hydrocephalus.
6 November 2018
The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch
2 November 2018
IF Youth Group member Mirela participated at the Eurochild Conference 2018, "Building a better Europe with children: All aboard!"
23 October 2018
From 5 to 7 October we were in Lisbon for a training promoting the rights of young people with spina bifida and hydrocephalus. Take a look at the report and the video we realized about the training!
23 August 2018
Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.
13 August 2018
Congratulations to Dr. G.D. Agrawal, founder of the company Surgiwear in India, which produces the Chhabra shunt for the treatment of Hydrocephalus!
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