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IF workshop in Madrid

We were in Madrid this November for our European Workshop, this year focused on continence management and ageing with spina bifida and hydrocephalus.

In Memoriam: Thomas (Tom) Edmund Baroch, disability advocate

The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch

Mirela Bukovac at the Eurochild Conference 2018

IF Youth Group member Mirela participated at the Eurochild Conference 2018, "Building a better Europe with children: All aboard!"

Final report on 'My Rights' training

From 5 to 7 October we were in Lisbon for a training promoting the rights of young people with spina bifida and hydrocephalus. Take a look at the report and the video we realized about the training!

Rebecca Alitsi, former IF fellow, co-facilitator at IDA’s workshop

Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.

IF Award at the 28th International Conference on SBH in India!

Congratulations to Dr. G.D. Agrawal, founder of the company Surgiwear in India, which produces the Chhabra shunt for the treatment of Hydrocephalus!

Update for WSBHD18

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.

IF's Annual Report 2017 is out now!

The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.

First woman with a disability elected for the UN CEDAW Committee

Ana Paláez Narváez is the first woman with disabilities elected for the UN Committee on the Elimination of Discrimination against Women (CEDAW).