16 September 2019
IF has developed an analysis on which new commissioners are key for the spina bifida and hydrocephalus community. Take a look!
16 July 2019
IF participated at EPF STYPA 2019 edition organised in Vienna from 7-10 July 2019! The main focus was on ethical dilemmas and evolution of patient advocacy.
1 July 2019
IF Secretary General has joined a panel of experts to work together on strengthening birth defects surveillance globally
28 May 2019
During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.
22 May 2019
IF is very happy to announce that our Secretary General has been re-elected in the Boards of Directors of EURORDIS, which is now focusing on promoting holistic care for people living with rare diseases all over Europe.
9 May 2019
Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.
8 April 2019
This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!
13 March 2019
It's such a great news to learn that Elena Zappoli, who is IF Board member and President of APEBI, has been designated as Director of the National Observatory of Disability!
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
