6 October 2021
On October 25th 2021, the International Federation for Spina Bifida and Hydrocephalus together with worldwide members will celebrate the World Spina Bifida and Hydrocephalus Day 2021 (WSBHD21) under the theme “Unlock Your Rights to Health”. IF facilitates dialogues and exchanges of best practices among IF Member Associations around the world to optimise the dissemination of information and campaigns on digital platforms. Especially for the WSBHD21, IF organises a side event on Communication: ‘From Traditional to Digital - Unlock Your Digital Communication’ to which all Communications Coordinator of Member Associations are exclusively invited.
11 January 2021
To promote the availability of good quality wheat- and maize flour enriched with at least iron and folic acid, the Food Fortification Initiative (FFI), the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International and the then AkzoNobel, now Nouryon, created the Smarter Futures partnership some 10 years ago. Now, it is a much larger partnership with a Steering group comprising of FFI, Global Alliance for Improved Nutrition (GAIN), Muehlenchemie, Buhler, Nutrition International (NI), Nouryon (formerly AkzoNobel), HKI, World Food Programme (WFP), IF and the Dutch Ministry of Foreign Affairs.
10 November 2020
IF recently published a position paper with recommendations to ensure that the implementation of the Multiannual Financial Framework (MFF) of the EU advances the rights of individuals with SBH within and beyond the EU.
2 November 2020
IF reflects on the WSBHD 2020 - The World Spina Bifida and Hydrocephalus Day (WSBHD) on October 25 is a very special highlight on our International agenda. It gives us the opportunity to raise awareness on SBH and share our stories with our stakeholders.
29 October 2020
IF will contribute to the consultation on the roadmap for the European Disability Strategy 2021-2030 and urges its European members to do the same.
25 October 2020
Join the 2020 World Spina Bifida and Hydrocephalus Day celebrations!
23 October 2020
Learn more about the rights of individuals with SBH as per article 25 of the UNCRPD
24 April 2020
Two new Knowledge Briefs have been published by the Folate Task Team, with the support of IF, to help reduce the incidence of neural tube defects, with a special focus on low and middle income countries
28 March 2019
IF’s long-time partners Femke Bannink, Ruth Nalugya and Geert van Hove are the authors of a study aiming to give a new perspective on how disability is perceived in Uganda, and to develop a better way to include children with disabilities in the primary education system.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
