1 March 2019
At the end of May we are all called to vote for the European elections 2019 and IF strongly encourages European people with SBH to vote. Let's make make sure that the EU will become an inclusive society for all!
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!
25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.
24 January 2019
Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and independent living!
7 December 2018
This year IF took part to the annual conference of the European Day of Persons with Disabilities, organized by the European Commission in collaboration with the European Disability Forum.
19 November 2018
We think that accessible toilets for persons with disabilities are a basic human right. Read our statement for the World Toilet Day!
12 November 2018
The “Family Care for Children with Disabilities: Practical Guidance for Frontline Workers in Low- and Middle-Income Countries” is a precious document for social service workers assisting children with disabilities and their families.
6 November 2018
IF, together with COFACE Families Europe and 11 other NGOs, sent an open letter to the European Parliament, asking to find an agreement on the EU Work-life balance Directive by the end of the year.
6 November 2018
The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
