11 March 2025
National SBH Associations play a key role in monitoring the implementation of the UNCRPD! You can learn more about this process in the IF Information Package on the UNCRPD and the reporting cycle. Check the agenda to see which countries come for review by the CRPD Committee in 2025.
27 September 2024
National SBH Associations play a key role in monitoring the implementation of the UNCRPD! Have a look below to understand which countries come for review of adoption of List of Issues for the year 2025. It is strongly advised to prepare and submit reports as early as possible.
20 September 2024
Breaking news: A recent European study by EDF reveals that there is currently no country in the European region that fully complies with article 12 of the CRPD.
18 September 2024
The International Federation for Spina Bifida and Hydrocephalus (IF) calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis.
13 June 2024
IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.
16 May 2024
IF announces a call for input to inform the Special Rapporteur’s forthcoming report to the 79th session of the UN General Assembly in October 2024. A Survey to Assess the Involvement of SBH Associations in the Implementation of SDGs.
24 April 2024
Technology has always played an important role in facilitating the mobility and accessibility for persons with disabilities, including the global Spina Bifida and Hydrocephalus (SBH) community. Now more than ever people and communities are becoming increasingly reliant on technologies for various aspects of private and public life, including in education.
27 February 2024
IF joined the #ZeroCon24 in its mission to ensure zero barriers towards education. IF's Secretary General Dr Sylvia Roozen provided an Impulse Statement and moderated a session whereby Zero Project Awardees among others focussed on proven solutions that support disabled individuals in remote areas, focusing on early disorder detection and assistive devices. The session is broadcasted from the United Nations Office in Vienna, Austria.
6 December 2023
In an upcoming statement, IF calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis. According to the Office of the High Commissioner for Human Rights (OHCHR), a humanitarian crisis includes man-made conflict, natural disasters or pandemics – or all of them. This raises concerns on human-rights and exacerbate pre-existing human rights vulnerabilities, especially for persons with disabilities.
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
