25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.
13 February 2019
The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard!
30 January 2019
IFGPI has started a new programme to engage IF members in prevention initiatives. The first prevention clinic has proved to be a great success!
24 January 2019
Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and independent living!
9 January 2019
IF has launched a questionnaire on sexuality and body-awareness of people with Spina Bifida and Hydrocephalus (SBH).
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
