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IF Secretary General advocates for rare diseases at UN

IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.

World Birth Defects Day 2019 Toolkit

The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard!

IF and FFI renew the Smarter Futures partnership with Nouryon

2019 marks the 10-year anniversary of the Smarter Futures partnership in which Nouryon collaborates with the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International (HKI), and the Food Fortification Initiative (FFI) to improve and increase availability of fortified wheat, maize flour and rice that meets quality and nutrition standards in Africa.

IF Prevention Consultancy Clinic

IFGPI has started a new programme to engage IF members in prevention initiatives. The first prevention clinic has proved to be a great success!

IF expert Steven Schiff wins award for research on preventing infections

We congratulate on IF expert and friend Steven Schiff, who received a prestigious award for his work on predictive models for the personal treatment of infectious diseases, which lead to high risk of hydrocephalus.

Rebecca Alitsi, former IF fellow, co-facilitator at IDA’s workshop

Rebecca Alitsi, from the United Disabled Persons of Kenya and former IF fellow, has been selected as one of the co-facilitators for a workshop on ensuring the rights of indigenous persons with disabilities.

IF's Annual Report 2017 is out now!

The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.

UK hosts first ever Global Disability Summit

On 24 July 2018 the UK government, through its Department for International Development (UK DFID), will co-host its first ever Global Disability Summit with the International Disability Alliance (IDA) and the Government of Kenya.

BethanyKids’ Mobile Clinic in Kenya helps thousands of children with disabilities

To learn how the BethanyKids' Mobile Clinic operates in Kenya, you can now watch a short video documentary.