11 January 2021
To promote the availability of good quality wheat- and maize flour enriched with at least iron and folic acid, the Food Fortification Initiative (FFI), the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International and the then AkzoNobel, now Nouryon, created the Smarter Futures partnership some 10 years ago. Now, it is a much larger partnership with a Steering group comprising of FFI, Global Alliance for Improved Nutrition (GAIN), Muehlenchemie, Buhler, Nutrition International (NI), Nouryon (formerly AkzoNobel), HKI, World Food Programme (WFP), IF and the Dutch Ministry of Foreign Affairs.
14 June 2019
On12-14 June, IF Secretary General was in New York for the 12th session of the Conference of State Parties (COSP) to the UN Convention on the Rights of Persons with Disabilities (CRPD), an annual event focused on discussing the progress on the implementation of the CRPD.
28 May 2019
During a side event organised by Rare Diseases International at the 72nd World Health Assembly, IF Secretary General talked about the importance of data in the areas of care and prevention, in the frame of Universal Health Coverage.
27 May 2019
IF’s response focuses on the key role of medical education in the primary prevention of neural tube defects and with regard to care for persons with spina bifida and hydrocephalus (SBH).
25 April 2019
People born with spina bifida and hydrocephalus are at risk of accelerated ageing and need to be protected against financial hardship and institutionalisation
8 April 2019
This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!
28 March 2019
IF’s long-time partners Femke Bannink, Ruth Nalugya and Geert van Hove are the authors of a study aiming to give a new perspective on how disability is perceived in Uganda, and to develop a better way to include children with disabilities in the primary education system.
12 March 2019
We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age!
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
