Upcoming events

Invitation Upcoming Webinar on January 18, 2024

Invitation Upcoming Webinar on February 8, 2024. For registration: https://eurogen-ern.eu/webinars/upcoming-webinars/

INVITATION FOLLOW UP MEETING PEDIATRIC UROLOGICAL GUIDELINES & EU SURVEY STUDY - FEBRUARY 29

February 29 marks Rare Disease Day (RDD), an annual observance occurring on February 29, the “rarest” day of the year! Rare Disease Day, established in 2008, is a global movement advocating for social equity, healthcare access, and diagnosis and therapies for those with rare diseases. Observed annually on February 28 (or 29 in leap years), it unites a diverse international rare disease community under the coordination of EURORDIS and 65+ national alliance patient organisations.

As we approach March 3, the International Federation for Spina Bifida and Hydrocephalus (IF) eagerly anticipates joining the global community in commemorating the 9th edition of World Birth Defects Day (WBDD). This year's theme, "Many Birth Defects, One Voice," underscores the power of our collective voice in raising awareness about the various challenges posed by birth defects.

Join IF, WHO, Children’s Heartlink and other civil society organizations for the World Birth Defects Day Webinar on March 4! In this meeting, speakers will share their perspectives as to how we can advance birth defects inequities through prevention, lifesaving, and lifelong care.

Every year, the International Federation for Spina Bifida and Hydrocephalus (IF) proudly marks International Women’s Day (#IWD) on March 8th, uniting our global community. We extend an invitation to activists, leaders, innovators, and change-makers committed to shaping an equal future.

Every year, the International Federation for Spina Bifida and Hydrocephalus (IF) proudly marks International Women’s Day (#IWD) on March 8th, uniting our global community. We extend an invitation to activists, leaders, innovators, and change-makers committed to shaping an equal future.