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Did you know that more than 300,000 babies worldwide are born with a condition you may have never heard of? Spina Bifida is a neural tube defect; in mild cases,… -
Fortifying our Future: Coming together to support the World Health Assembly Resolution on Food Fortification: Key Takeaways
The webinar ‘Fortifying our Future: Coming together to support the World Health Assembly Resolution on Food Fortification’, held on 4 April 2023, was hosted by Global Alliance for Improved Nutrition… -
WSBHD18 social media toolkit
25 September 2018 // Today, 1 month before the 7th World Spina Bifida and Hydrocephalus Day (WSBHD), IF is happy to announce good news! First, as you might know, our… -
“My Rights” training in Lisbon
3 October 2018// From Friday 5 to Sunday 7 October, IF will be in the beautiful city of Lisbon, Portugal for a youth training called “My Rights: independent living, activism… -
How is the COVID-19 affecting the SBH community?
Taking into account the current emergency situation regarding the coronavirus (COVID-19) which has been defined as ‘pandemic’ by the World Health Organisation, IF is reorganising its activities to ensure that… -
Update for WSBHD18
17 July 2018 // There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses… -
Folic acid, human rights and sexuality among the topics at IF EU workshop in Belgrade
23 May 2019 // On 18 and 19 May, IF held its first European workshop of 2019 in Belgrade, the fascinating capital of Serbia. The workshop dealt with different topics,… -
IF Conferences
I. INTERNATIONAL CONFERENCE ON SPINA BIFIDA AND HYDROCEPHALUS The 29th International Conference on Spina Bifida and Hydrocephalus Diverse Needs, Same Rights will take place during September 5 to 9 2022. The… -
Universal Health Coverage: Including Rare Diseases to leave no one behind
28 May 2019 // On 23 May, IF Secretary General was in Geneva for the a side event organised by the Rare Diseases International (RDI) at the World Health Organization… -
WSBHD21 side-event ‘From Traditional to Digital – Unlock Your Digital Communication’
On October 25th 2021, the International Federation for Spina Bifida and Hydrocephalus together with worldwide members will celebrate the World Spina Bifida and Hydrocephalus Day 2021 (WSBHD21) under the theme…