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IF represented at the EPF STYPA!
From Sunday 7th July to Wednesday 10th July 2019 the European Patientsβ Forum organised its new edition of the Summer Training for Young Patientsβ Advocates (STYPA) and IF had the… -
Women’s Health Wednesday
12 September 2018 // This month the IF Global Prevention Initiative (IFGPI) has launched the βWomenβs Health Wednesdayβ campaign, creating a new occasion to spread awareness about womenβs health literacy,… -
WFAAW23 Webinar – Preventing Birth Defects and Saving Lives: Folic Acid-Preventable Spina Bifida, Anencephaly
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World Folic Acid Awareness Week 2023
What is the World Folic Acid Awareness Week (WFAAW)? Every January, the International Federation for Spina Bifida and Hydrocephalus (IF) works with its member organisations, partners and supporters to promote… -
IF advocates for birth registration at 12th COSP
14 June 2019 // From 12 to 14 June, IF Secretary General was at the 12th session of the Conference of State Parties (COSP) to the Convention on the Rights… -
IF presents its Annual Report 2018
19 June 2019 // IF is happy to announce that the IF General Assembly approved our Annual Report (AR) for the year 2018, featuring all of our activities and achievements… -
2019 World Spina Bifida & Hydrocephalus Day: ‘The Full Picture’ campaign
30 July 2019 //Β In 2019, we celebrate the 8th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) together with IF’s 40th anniversary so we are preparing something… -
IF STATEMENT ON TECHNOLOGIES AND ACCESSIBILITY IN EDUCATION
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IF Secretary General re-elected in EURORDIS Board of Directors
22 May 2019 // Last week the EURORDIS Membership Meeting 2019 was held in Bucharest. EURORDIS is an organisation that represents 30 million European people living with rare diseases and… -
Comic book features young woman with Spina Bifida
12 April 2018 // LΓ©a Bayekula (22), born with Spina Bifida, is a graphics student in real life and a wheelchair athlete who wants to join the Paralympics in Tokyo…