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On August 12 2022, the IF International Youth Group SBH would like to mark this occasion this year. Our goal is to raise awareness of spina bifida and hydrocephalus (SBH) and one of the current youth issues around the world: Independent Living. We are calling YOU, all young people with SBH to join this campaign with us.

On February 25 2022, the IF International Youth Group held a Meet & Greet with Vangelis Koutalianos, a true motivational speaker born with Spina Bifida. During this event, young participants had a chance to listen and chat with Vangelis Koutalianos. He shared with all the participants lots of interesting and inspiring life stories.

As the year draws to a close IF celebrates the publication of the IF Statement on mental, physical and sexual health for youth with SBH. 

IF launches the report “Mental Health Implications of COVID-19 on Youth with Spina Bifida and Hydrocephalus- an explorative survey conducted by the IF International Youth Group with SBH” . The report underlines the current perceptions and lived experiences among youth with SBH with respect to aspects of mental health. This document builds upon an explorative study conducted in 2019 by the IF International Youth Group with SBH.

On November 8th, 9th, 15th and 16th, The International Federation for Spina Bifida and Hydrocephalus gave the “IF Human Rights and Advocacy Training - Accessibility in Focus”