WSBHD21 side-event “Ageing well with Spina Bifida and Hydrocephalus”
The “Ageing well with Spina Bifida and Hydrocephalus” side-event organised, by the Working Group on Ageing, to celebrate with us the World Spina Bifida and Hydrocephalus Day 2021.
As every year, IF is looking forward to joining its Members and the SBH community to celebrate this important day. The barriers may vary between communities and individuals but the goal of advancing the right to health for all individuals with SBH remains the same.
For this occasion, not only a main event will be organised to celebrate this important day with having as a main theme “Unlock Your Right to Health” but also a side-event organised by the IF Working Group on Ageing that will be held on October 27th at 3PM (CEST).
Speakers from different regions will share their experience on different aspects such as the need for support networks; on multidisciplinary care and on physical health and rehabilitation.
Those testimonies will be followed by a discussion where participants can freely ask, without any taboo, questions and/or share their personal experiences.
When? October 27th at 3PM – 4.30PM (CEST)
Where? Zoom online meeting
Participants? Reserved for individuals with SBH – 18 years and older – and/or a family to an individual with SBH
Registration link? https://bit.ly/WSBHD21Ageing
Draft Agenda
Moderator: Kevin O’Donnell – IF Working on Ageing Chairman
| Time (CEST): | Sessions: | Speakers: |
| 3pm – 3.05pm | Word of Welcome | Kevin O’Donnell
IF Working Group on Ageing Chairman |
| 3.05pm – 3.10pm | Sharing their experiences on the need for support networks in Australia | Martin Duff
Perth, Australia |
| 3.10pm – 3.15pm | Sharing his experience with multidisciplinary care in Belgium | Mario Sel
Flemish Association for Spina Bifida and Hydrocephalus (VSH) |
| 3.15pm – 3.20pm | Sharing experiences on physical health and rehabilitation in the USA | Monica Still
Spina Bifida Association |
| 3.20pm – 3.25pm | Sharing his experience on Mental Health among persons with SBH | Kevin O’Donnell
Spina Bifida Hydrocephalus Scotland |
| 3.25pm – 3.30pm | Sharing her experience with a Holistic Approach to Physical Rehabilitation | Judy Feeley
Hydrocephalus Canada Member and Hydrocephalus Association Member |
| 3.30pm – 4.15pm | Discussion | All participants |
| 4.15pm – 4.30pm | Closing words | Kevin O’Donnell
IF Working Group on Ageing Chairman |
Join the IF Working Group on Ageing and share your view and perspective on ageing with SBH!
See you there!
IF is looking forward to seeing your participation during the “Ageing well with Spina Bifida and Hydrocephalus” side-event!
If you have any questions please contact [email protected].
