6 December 2023
With a new IF statement, IF stands as a precursor with its long-time focus on rehabilitation. Indeed, almost thirty years ago, IF contacted the World Health Organization and proposed to work together for producing a guide for mid-level rehabilitation workers, to be used for children with Spina Bifida and Hydrocephalus (SBH).
6 December 2023
In an upcoming statement, IF calls for a greater awareness and urgent action towards the needs of persons with Spina Bifida and Hydrocephalus (SBH) in time of conflict and humanitarian crisis. According to the Office of the High Commissioner for Human Rights (OHCHR), a humanitarian crisis includes man-made conflict, natural disasters or pandemics – or all of them. This raises concerns on human-rights and exacerbate pre-existing human rights vulnerabilities, especially for persons with disabilities.
6 November 2023
On November 6 2023, Dr Sylvia Roozen - Secretary General of the International Federation for Spina Bifida and Hydrocephalus emphasised in her keynote address the important role ICBDSR members have on surveillance research to inform NTD Prevention & Care.
25 October 2023
The WSBHD23 Conference brought together global communities to raise awareness about Spina Bifida and Hydrocephalus. IF members from the regions Africa, Americas, Asia-Pacific, and Europe shared their vision of “Accessibility4All” for this year’s WSBHD23!
16 September 2023
On September 16 2023, IF youth member LauraRosillo Beneyto represented the global disability community on behalf of IF and IDA at the youth pillar "Torchbearers for the SDGs: Meaningful Youth Engagement & the 2030 Agenda" during the SDG Action Weekend as part of the SDG Summit at the UN Headquarter in New York. Re-watch the speech by Laura here!
6 September 2023
Today, the Commission has proposed the introduction of a European Disability Card as well as the enhancement of the current European Parking Card for persons with disabilities. Both cards will be recognised all across the EU and make it easier for persons with disabilities to travel across the European Union.
15 August 2023
Are you passionate about working with persons with Spina Bifida and Hydrocephalus, engaging with international stakeholders, writing articles and designing materials?
2 August 2023
Collaboration of the International Federation for Spina Bifida and Hydrocephalus with the European Association of Urology (EAU), ERN eUROGEN, and the ERN ITHACA on person centred paediatric urological guidelines for spina bifida. It is a unique collaboration whereby we actively involve persons with spina bifida and/or hydrocephalus and their families to improve the existing guidelines in making them more patient centred. In this way, the spina bifida and hydrocephalus community is actively involved in the development of this survey study from the beginning onwards.
30 June 2023
It is a real pleasure to share with you the third newsletter of the year 2023. With this newsletter, we, together with YOU, look back to an active first half year, especially with respect to IF General Meeting and several high level events such as the adoption of the WHA76.19 Resolution and the 16th Session of the Conference of States Parties to the CRPD.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
