25 October 2023
The WSBHD23 Conference brought together global communities to raise awareness about Spina Bifida and Hydrocephalus. IF members from the regions Africa, Americas, Asia-Pacific, and Europe shared their vision of “Accessibility4All” for this year’s WSBHD23!
16 September 2023
On September 16 2023, IF youth member LauraRosillo Beneyto represented the global disability community on behalf of IF and IDA at the youth pillar "Torchbearers for the SDGs: Meaningful Youth Engagement & the 2030 Agenda" during the SDG Action Weekend as part of the SDG Summit at the UN Headquarter in New York. Re-watch the speech by Laura here!
6 September 2023
Today, the Commission has proposed the introduction of a European Disability Card as well as the enhancement of the current European Parking Card for persons with disabilities. Both cards will be recognised all across the EU and make it easier for persons with disabilities to travel across the European Union.
15 August 2023
Are you passionate about working with persons with Spina Bifida and Hydrocephalus, engaging with international stakeholders, writing articles and designing materials?
2 August 2023
Collaboration of the International Federation for Spina Bifida and Hydrocephalus with the European Association of Urology (EAU), ERN eUROGEN, and the ERN ITHACA on person centred paediatric urological guidelines for spina bifida. It is a unique collaboration whereby we actively involve persons with spina bifida and/or hydrocephalus and their families to improve the existing guidelines in making them more patient centred. In this way, the spina bifida and hydrocephalus community is actively involved in the development of this survey study from the beginning onwards.
30 June 2023
It is a real pleasure to share with you the third newsletter of the year 2023. With this newsletter, we, together with YOU, look back to an active first half year, especially with respect to IF General Meeting and several high level events such as the adoption of the WHA76.19 Resolution and the 16th Session of the Conference of States Parties to the CRPD.
9 June 2023
It is with great pleasure that we announce that The seventy-sixth World Health Assembly has voted to adopt the resolution WHA76.19 'Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification'. This is a tremendous achievement for the global SBH community.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
