Latest news

IF organised a 'Meet and Greet' meeting in May 2024 to facilitate a collaborative discussion between members of the IF International Youth Group SBH and the IF Working Group on Ageing with SBH.

IF announces a call for input to inform the Special Rapporteur’s forthcoming report to the 79th session of the UN General Assembly in October 2024. A Survey to Assess the Involvement of SBH Associations in the Implementation of SDGs.

The International Disability Alliance Youth Committee, together with the Equal World campaign and the Stakeholder Group of Persons with Disabilities, created a 10-point action plan for a more inclusive future. From sustainable financing to tech innovation and global peace, these actions demand decision-makers' attention and action.

The upcoming 30th International Conference for Spina Bifida and Hydrocephalus will take place on October 24-26 in Kuala Lumpur, Malaysia. It is an anniversary conference and a great opportunity for youth to be visible, meet other young people around the world, present the youth work on an international stage, interact with healthcare professionals, scientists, policymakers, and develop new networks. Support our youth to participate!

Technology has always played an important role in facilitating the mobility and accessibility for persons with disabilities, including the global Spina Bifida and Hydrocephalus (SBH) community. Now more than ever people and communities are becoming increasingly reliant on technologies for various aspects of private and public life, including in education. 

In this article the IF President Cato Lie interviewed paralympic gold medalist Jesper Pedersen. In the interview Cato and Jesper talked about the barriers and opportunities to achieve their ambitions and live a fulfilling life with SBH. A topic which is worth reading by both people with SBH and those without. The interview includes advice for people with SBH and demonstrates the physical and social barriers which they have encountered. Barriers which society as a whole needs to recognise and dismantle.