11 March 2025
National SBH Associations play a key role in monitoring the implementation of the UNCRPD! You can learn more about this process in the IF Information Package on the UNCRPD and the reporting cycle. Check the agenda to see which countries come for review by the CRPD Committee in 2025.
8 March 2025
Being a UN member and having an EU candidate status made Montenegro ratify numerous international treaties in the area of human rights, and some progress towards the improvement of disability rights was made. However, as it happens sometimes, political processes are strongly influencing the realisation of human rights, and the Montenegrin case was not an exception.
6 March 2025
The Clinical Patient Management System, or CPMS for short, is a secure web-based tool via which allows multidisciplinary teams of experts across the European Union to discuss individual cases involving rare or low prevalence complex diseases or conditions.
1 March 2025
IF has recently joined the Rare Diseases International Coalition in support of the adoption of the WHA Resolution on Rare Diseases, which will be discussed at the World Health Assembly (WHA) in May 2025.
28 February 2025
The International Federation for Spina Bifida and Hydrocephalus (IF) is looking for a board member in preparation for the upcoming elections scheduled for June 2024.
23 February 2025
Today, on Rotary's 120th anniversary, we are happy to launch the publication 'Service Clubs in Action for Spina Bifida: Prevention and Care'. This publication aims to explore our common vision of a fruitful future collaboration, building on the already existing strong partnerships between Service Clubs and people with Spina Bifida and Hydrocephalus (SBH) and their families that go back decades.
18 February 2025
It is with sadness that we announce the passing of our founding father Björn Ründström. Björn was a pioneer of the International Federation for Spina Bifida and Hydrocephalus (IF) and will be greatly missed. Our heartfelt sympathy and thoughts are with his family and friends.
12 February 2025
It is with great pleasure that we announce the publication of the updated pediatric urological guidelines addressing key challenges in the care of children and adolescents with Spina Bifida. IF calls upon all relevant medical specialists to endorse and implement the principles outlined in these new guidelines.
7 January 2025
On January 7, 2025, IF held a webinar ‘Leaving No One Behind’, dedicated to World Folic Acid Awareness Week, that provided invaluable expertise and experience from the public, private, and civic sector representatives. The theme “Leaving No One Behind” emphasised the importance of ensuring efforts to prevent Neural Tube Defects (NTDs) are sustained and maternal health outcomes are inclusive, equitable, and accessible to all individuals, regardless of their geographic location, socioeconomic status, or level of awareness.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
