7 January 2025
On January 7, 2025, IF held a webinar ‘Leaving No One Behind’, dedicated to World Folic Acid Awareness Week, that provided invaluable expertise and experience from the public, private, and civic sector representatives. The theme “Leaving No One Behind” emphasised the importance of ensuring efforts to prevent Neural Tube Defects (NTDs) are sustained and maternal health outcomes are inclusive, equitable, and accessible to all individuals, regardless of their geographic location, socioeconomic status, or level of awareness.
12 December 2024
According to the recent WHO Global Report on Health Equity for Persons with Disabilities, approximately 1.3 billion people worldwide live with significant disabilities, and far too often, they face avoidable inequalities such as limited access to healthcare services, systemic biases, and physical, social, and institutional barriers. Addressing these injustices is not only a moral imperative but also a necessity to achieve Universal Health Coverage (UHC) and the Sustainable Development Goals.
9 December 2024
Mental health is fundamental to overall well-being, enabling individuals to navigate life's challenges, realise their potential, and contribute meaningfully to their communities. However, for individuals with Spina Bifida and Hydrocephalus (SBH), the path to mental well-being is often obstructed by societal stigma, discrimination, and a lack of adequate support systems.
9 December 2024
At IF, we are looking for a company to develop and design a new, modern, user-friendly, accessible and up-to-date website, transfer all content from the current website to the new one, as well as to maintain the website and intervene when assistance is needed. All offers must be sent to: [email protected].
3 December 2024
On the International Day of Persons with Disabilities on 3 December 2024, the 1st Euregional Youth Meeting organized with Zonnebloem JONG took place in the province of Limburg in the Netherlands. This one-day event was a unique opportunity for young people with disabilities from Belgium, Germany, France, Poland and the Netherlands to literally cross borders to meet and exchange on the topic of independent living.
14 November 2024
During each international conference, the International Federation for Spina Bifida and Hydrocephalus (IF) presents the Award of Excellence to an individual or organisation in recognition of their special contribution to the service of people with disabilities in general or to people with hydrocephalus and spina bifida in particular. In 2024, Prof. Dr. Rick Finnell received the Award of Excellence during the 30th International Conference on Spina Bifida and Hydrocephalus in Kuala Lumpur, Malaysia.
14 November 2024
The 30th International Conference on Spina Bifida and Hydrocephalus, convened in Kuala Lumpur from October 24th to 26th, resulted in a historic declaration that calls for global action to improve the prevention of Neural Tube Defects (NTDs) and ensure continuous, coordinated, and inclusive multidisciplinary care for individuals affected by spina bifida and /or hydrocephalus (SBH) throughout all stages of life, from childhood to adulthood. Join the action to co-sign the Kuala Lumpur Declaration.
7 November 2024
During this year's World Spina Bifida and Hydrocephalus Day (WSBHD) on 25 October, we brought further awareness as to how we can bridge the gaps for our global SBH community. For the first time we were able to organise a meeting in a hybrid way with 350 participants from 30 countries attending our conference in Malaysia in person, and 32 joining our conference webinar online.
31 October 2024
The 30th International Conference on Spina Bifida and Hydrocephalus took place from October 24 to 26 in Kuala Lumpur Malaysia. Together, we discussed strategies for adressing gaps in healthcare and prevention, while promoting a multidisciplinary approach that places our community at its core. Our heartfelt congratulations to SiBIAM as hosting association. This conference was a starting point for future meetings whereby we continue building bridges together!
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
