Latest news

IF urges for actions during the 17th session of the Conference of State Parties to the UN CRPD (COSP17). The overarching theme is “Rethinking disability inclusion in the current international juncture and ahead of the Summit of the Future”.

In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.

Victorial Sandoval is the new President of The International Federation for Spina Bifida and Hydrocephalus.

This year marks the seventy-seventh World Health Assembly (WHA77) where we celebrate one year one year after the WHO EB decided to recommend to the WHA76 the adoption the resolution ‘Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification’.

On May 27 IF together with its partners organised an in-person WHA side event titled ‘Congenital Anomalies and Universal Health: Leaving No One Behind’. During this side event on May 27th, 2024 it was discussed what resources are needed to serve children born with congenital anomalies around the globe in need of lifelong care, and how to advocate with policymakers for their inclusion in the universal health coverage agenda.

During the WHA77 IF Secretary General discussed joint approaches to ensure social protection for food security and nutrition for all!