Latest news

Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

Filter on:

28–36 of 325 results

Lessons Worth Sharing from the Bridge CRPD-SDGs ASEAN Training

Held in Bangkok, Thailand, in February 2025, the Bridge CRPD-SDGs ASEAN training is an outstanding capacity-building program that convenes disability rights advocates, activists, and professionals from across Southeast Asia.

EU CRPD review: Stronger EU action required to advance disability rights

Held on 11–12 March 2025, the European Union (EU)’s review by the United Nations Committee on the Rights of Persons with Disabilities (CRPD Committee), was a crucial moment for the protection of the rights of persons with disabilities in Europe. The result of the review is an evaluation report known as the ‘Concluding Observations’.

International Women’s Day 2025 Webinar ‘Accelerate Action!’

On 7 March 2025, IF in collaboration with the Spina Bifida and Hydrocephalus Association Malaysia (SiBIAM), the European Federation of Hard of Hearing People (EFHOH), the European Network on Independent Living (ENIL), the Spina Bifida Federal Association Sudan, and the World Federation of the Deafblind (WFDB), organised the International Women’s Day Webinar ‘Accelerate Action’.

Strong commitments at the Global Disability Summit 2025

This week the Global Disability Summit (GDS) takes place in Berlin Germany. The GDS represents a pivotal opportunity to advance disability inclusion on a global scale. The active involvement and participation of civil society, particularly Organisations of Persons with Disabilities (OPDs), is crucial to ensuring the Summit’s success.

The 2025 list of Countries for review by the CRPD Committee

National SBH Associations play a key role in monitoring the implementation of the UNCRPD! You can learn more about this process in the IF Information Package on the UNCRPD and the reporting cycle. Check the agenda to see which countries come for review by the CRPD Committee in 2025.

Leaving No One Behind in Montenegro

Being a UN member and having an EU candidate status made Montenegro ratify numerous international treaties in the area of human rights, and some progress towards the improvement of disability rights was made. However, as it happens sometimes, political processes are strongly influencing the realisation of human rights, and the Montenegrin case was not an exception.

Creating collaboration through the Clinical Patient Management System

The Clinical Patient Management System, or CPMS for short, is a secure web-based tool via which allows multidisciplinary teams of experts across the European Union to discuss individual cases involving rare or low prevalence complex diseases or conditions.

The Coalition in Support of the WHA Rare Diseases Resolution

IF has recently joined the Rare Diseases International Coalition in support of the adoption of the WHA Resolution on Rare Diseases, which will be discussed at the World Health Assembly (WHA) in May 2025.

Election Time!

The International Federation for Spina Bifida and Hydrocephalus (IF) is looking for a board member in preparation for the upcoming elections scheduled for June 2024.