Latest news Spina Bifida (74) Prevention (57) Hydrocephalus (53) International Solidarity (30) Developing Countries (22) Human Rights (108) Network Development (57) Community Building (51) Right to Health (64) WSBHD (20) Ageing (12) Youth (26) Europe (65) Sexuality (7) SkiForAll (4) Vacancy (3) 12 March 2019 Folic acid distribution in schools in Uganda We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age! Read more 11 March 2019 Open Letter to the EPSCO Council It's time to approve the Work-Life Balance Directive! Now that a first important step in the right direction has been taken, IF joins COFACE Families Europe and 11 other NGOs in calling for a swift adoption of the directive. Read more 1 March 2019 European Elections 2019: why it is important to vote At the end of May we are all called to vote for the European elections 2019 and IF strongly encourages European people with SBH to vote. Let's make make sure that the EU will become an inclusive society for all! Read more 28 February 2019 #ShowYourRare for Rare Disease Day 2019! For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus! Read more 25 February 2019 IF Secretary General advocates for rare diseases at UN IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF. Read more 13 February 2019 World Birth Defects Day 2019 Toolkit The World Birth Defects Day (WBDD) is approaching, and we decided to create a social media toolkit to support everyone who wants to make their voice heard! Read more Previous Page Next Page