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Discover the latest updates and important developments from the global Spina Bifida and Hydrocephalus community.

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Welcome to Athina, IF's new European Policy Officer!

This month Athina Giannoutsou joined our team! She will be IF's European Policy Officer, becoming the main liaison between our European members and the EU institutions.

IF submission on the rights of older persons with disabilities

People born with spina bifida and hydrocephalus are at risk of accelerated ageing and need to be protected against financial hardship and institutionalisation

Former Norwegian Minister and disability advocate Guro Fjellanger has passed away

Former Environmental Minister Guro Fjellanger, born with spina bifida, passed away much too soon at the age of 55.

'SKI for ALL' project by ASBI

Our Italian member organisation ASBI will coordinate a skiing project named “SKI for ALL”, part of the Erasmus+ Sport program and intended for children and young people with SBH or traumatic injuries.

World Health Day 2019: we need a Universal Health Coverage!

This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!

‘They Give Him a Chance’: a new study on inclusive primary education in Uganda

IF’s long-time partners Femke Bannink, Ruth Nalugya and Geert van Hove are the authors of a study aiming to give a new perspective on how disability is perceived in Uganda, and to develop a better way to include children with disabilities in the primary education system.

EU Parliament approves the European Accessibility Act

Yesterday 13th of March the European Accessibility Act was approved by the European Parliament. Even if there is still a long way to go, a first step towards creating a more accessible and inclusive Europe is done!

Elena designated Director of the National Observatory of Disability

It's such a great news to learn that Elena Zappoli, who is IF Board member and President of APEBI, has been designated as Director of the National Observatory of Disability!

Folic acid distribution in schools in Uganda

We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age!