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The IF Working Group on Ageing published its report “Ageing With Spina Bifida and Hydrocephalus: An Overview of Best Practices Around the World”. Also, the Executive Summary for the report is provided.

IF launched the report “Ageing with Spina Bifida and Hydrocephalus - Finding from Online Focus Group Discussions”. The report is a result of Focus Group Discussions during [month] 2021 with individuals with SBH.

IF has published a statement on ageing with Spina Bifida and Hydrocephalus (SBH).  Improvements in treatment and care means that there is a growing population of older people with SBH. The IF Working Group on Ageing with Spina Bifida and Hydrocephalus has been exploring the needs and challenges faced by individuals with lived experiences of ageing with SBH. 

On October 1, the world will celebrate the International Day of Older Persons. This day was designated by the United Nations General Assembly (by resolution 45/106) on 14 December 1990. On this day, IF takes this opportunity to raise awareness on ageing with Spina Bifida and Hydrocephalus, the barriers older persons with SBH can face and the need for lifting these barriers.

IF will contribute to the consultation on the roadmap for the European Disability Strategy 2021-2030 and urges its European members to do the same.

On the United Nations International Day of Older People, IF raises awareness on the rights and needs of people ageing with spina bifida and hydrocephalus.