22 November 2025
2025 has been a powerful reminder of the importance of youth leadership and global solidarity among young people living with SBH. As the Youth Group, we dedicated our efforts to understanding and amplifying the voices of our community, especially around mental health, identity, and disability acceptance.
9 September 2025
Youth camps can play a vital role in empowering young people with Spina Bifida and Hydrocephalus (SBH). IF member organisations in various countries organise successful youth camps focusing on practical abilities such as mobility, self-care, and confidence-building, while also fostering a sense of community and belonging among participants who share similar experiences.
19 August 2025
Established by the UN, August 12th has marked the celebration of International Youth Day (IYD) as a valuable opportunity for youth around the world to address the challenges they face and to advocate for meaningful change.
15 July 2025
Designated by the United Nations, August 12th marks International Youth Day - a global celebration that brings the world together to raise awareness of the cultural and legal issues affecting young people.
3 December 2024
On the International Day of Persons with Disabilities on 3 December 2024, the 1st Euregional Youth Meeting organized with Zonnebloem JONG took place in the province of Limburg in the Netherlands. This one-day event was a unique opportunity for young people with disabilities from Belgium, Germany, France, Poland and the Netherlands to literally cross borders to meet and exchange on the topic of independent living.
27 September 2024
On August 12 the IF International Youth Group SBH celebrated the UN recognised International Youth Day. For this year, youth started with a social media campaign and extended an invitation to all young people with SBH around the globe to amplify the voices of the youth. A particular highlight was the zoom webinar dedicated to Mental Health Matters organised by and for youth with Spina Bifida and Hydrocephalus around the world.
1 August 2024
This year 2024, the IF International Youth Group SBH would like to take this opportunity to raise awareness about the importance of several mental health related topics, including the role of friendships, sports and exercises, body confidence and self-esteem, and physical health. When? August 12!
3 May 2024
The International Disability Alliance Youth Committee, together with the Equal World campaign and the Stakeholder Group of Persons with Disabilities, created a 10-point action plan for a more inclusive future. From sustainable financing to tech innovation and global peace, these actions demand decision-makers' attention and action.
30 April 2024
The upcoming 30th International Conference for Spina Bifida and Hydrocephalus will take place on October 24-26 in Kuala Lumpur, Malaysia. It is an anniversary conference and a great opportunity for youth to be visible, meet other young people around the world, present the youth work on an international stage, interact with healthcare professionals, scientists, policymakers, and develop new networks. Support our youth to participate!
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
