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Ege Anli presents on advocacy and independent living

Ege Anli from the IF Youth Group and Turkish Spina Bifida Association gave an inspiring presentation about advocacy and independent living!

Sexuality and disability should not be a taboo

IF has launched a questionnaire on sexuality and body-awareness of people with Spina Bifida and Hydrocephalus (SBH).

"Saving Kidneys" training in Ukraine

Board member Dr. František Horn and the Spina Bifida and Hydrocephalus Association of Slovakia attended a training in Ternopil, Ukraine called "Saving Kidneys".

Guidelines for the care of people with spina bifida

A special release took place on World Spina Bifida and Hydrocephalus Day: 25 Guidelines to help improve spina bifida care around the world!

"My Rights" training in Lisbon

This Friday IF is going to Lisbon for a youth training called "My Rights: independent living, activism and participation for young people with spina bifida and/or hydrocephalus"!

WSBHD18 social media toolkit

Check out our World Spina Bifida and Hydrocephalus Day 2018 social media toolkit to learn how you can help to raise awareness on October 25!

SBH Ireland launches The Fight of Our Lives film

IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.

Update for WSBHD18

There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.

IF's Annual Report 2017 is out now!

The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.