16 May 2022
Recognizing the 63rd World Health Assembly’s Resolution on Birth Defects that appealed to member states to prioritize prevention of birth defects, we are concerned by the high number of pregnancies affected by folic acid-preventable spina bifida and anencephaly globally. The International Federation for Spina Bifida and Hydrocephalus together with GAPSBiF and G4Alliance work together to promote WHA Resolution for Folic Acid Fortification for Spina Bifida.
16 March 2022
IF invites you to attend and present your work during the upcoming 29th International Conference on Spina Bifida and Hydrocephalus. Not only the Conference is organised in order to share interests and updates from the national researchers around the world, but it will also cover different sessions on different topics relevant to IF Members such as urology, ageing, sexual health, and mental health.
15 February 2022
Each year, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Women’s Day (#IWD) on March 8th 2022 together with our Global Community and IF Women Focus Group Discussions. We are calling YOU to join us, the activists, leaders, innovators and change-makers working every day to build an equal future.
3 January 2022
IF organizes its yearly awareness week for primary prevention of NTDs during the World Folic Acid Awareness Week from January 3 to 9, 2022.
27 December 2021
As the year draws to a close IF celebrates the publication of the IF Statement on mental, physical and sexual health for youth with SBH.
30 November 2021
From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care. Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community.
27 October 2021
The World Spina Bifida and Hydrocephalus Day (WSBHD) main event, taking place on October 25 2021, was an inspiring moment of sharing across countries and continents. Together with a panel of speakers and participants from all around the world, a rich and elaborate programme was established.
15 October 2021
The World Spina Bifida and Hydrocephalus Day 2021 is around the corner! IF welcomes October 2021 as an awareness month during which various events and activities will take place around the World Spina Bifida and Hydrocephalus Day (WSBHD).
22 September 2021
The first online IF international Conference on multidisciplinary Care for Spina Bifida and Hydrocephalus taking place from September 14 to 17 2021 was a great success.