23 June 2022
IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.
28 February 2022
On February 16 2022, International Federation for Spina Bifida and Hydrocephalus (IF) organized the side event Advancing Disability Rights Through Multidisciplinary Care as part of the Global Disability Summit 2022.
15 February 2022
Each year, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Women’s Day (#IWD) on March 8th 2022 together with our Global Community and IF Women Focus Group Discussions. We are calling YOU to join us, the activists, leaders, innovators and change-makers working every day to build an equal future.
3 December 2021
Today on December 3rd, the International Federation for Spina Bifida and Hydrocephalus (IF) celebrates the International Day of Persons with Disabilities (IDPD). The United Nations General Assembly declared this day in 1992 (by resolution 47/3) with the goal to promote the rights and well-being of people with disabilities in all aspects of society and development, as well as to raise awareness about their position in political, social, economic, and cultural life.
2 December 2021
The European Commission together with the European Disability Forum organise a conference for the European Day of Persons with Disabilities. Held on 2-3 December, the 2021 European Day of Persons with Disabilities focuses on the topics of access to healthcare and digital transformation.
30 November 2021
From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care. Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community.
15 October 2021
The World Spina Bifida and Hydrocephalus Day 2021 is around the corner! IF welcomes October 2021 as an awareness month during which various events and activities will take place around the World Spina Bifida and Hydrocephalus Day (WSBHD).
12 October 2021
The UN Convention on the Rights of Persons with Disabilities (UNCRPD) is extremely important for IF and the global SBH community. Within it the indisputable rights of persons with disabilities are enshrined to which all States Parties to the UNCRPD commit to protect and advance.