30 November 2021
From 14 to 17 September 2021 the International Federation for Spina Bifida and Hydrocephalus (IF) held a conference on multidisciplinary care. Multidisciplinary care (MDC) for persons with Spina Bifida and Hydrocephalus (SBH) is essential in order to achieve ‘the highest possible standard of health’ (article 25 UN Convention on the Rights of Persons with Disabilities) for the global SBH community.
22 September 2021
The first online IF international Conference on multidisciplinary Care for Spina Bifida and Hydrocephalus taking place from September 14 to 17 2021 was a great success.
21 June 2021
It is with sadness that we announce the passing of our Senior Advisor Anna Verster, a much loved colleague of the IF family and founding mother of the Smarter Futures partnership. Anna was a much-valued and stalwart supporter of the International Federation for Spina Bifida and Hydrocephalus and the Smarter Futures partnership over many years and will be greatly missed. Our heartfelt sympathy and thoughts are with her family and friends.
20 January 2021
During the week of January 9 to 15 2021 IF celebrated the World Folic Acid Awareness Week (WFAAW). This is an annual recurring week in IF’s calendar to focus on additional awareness activities for folic acid and prevention all over the world.
11 January 2021
To promote the availability of good quality wheat- and maize flour enriched with at least iron and folic acid, the Food Fortification Initiative (FFI), the International Federation for Spina Bifida and Hydrocephalus (IF), Helen Keller International and the then AkzoNobel, now Nouryon, created the Smarter Futures partnership some 10 years ago. Now, it is a much larger partnership with a Steering group comprising of FFI, Global Alliance for Improved Nutrition (GAIN), Muehlenchemie, Buhler, Nutrition International (NI), Nouryon (formerly AkzoNobel), HKI, World Food Programme (WFP), IF and the Dutch Ministry of Foreign Affairs.
17 December 2020
IF will kick off the annual World Folic Acid Awareness Week (WFAAW) on Saturday 9th January 2021.
10 November 2020
IF recently published a position paper with recommendations to ensure that the implementation of the Multiannual Financial Framework (MFF) of the EU advances the rights of individuals with SBH within and beyond the EU.
29 June 2020
Within the current emergency situation due to COVID-19, IF has adapted the format and content of its European workshop. IF will meet its European members online!
24 April 2020
Two new Knowledge Briefs have been published by the Folate Task Team, with the support of IF, to help reduce the incidence of neural tube defects, with a special focus on low and middle income countries
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