12 March 2019
We're so happy to hear that our partner organisation SHA-U, supported also by Norad and RHF, is distributing folic acid in schools to girls of childbearing age!
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!
25 February 2019
IF Secretary General was at the United Nations headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave a speech focused on how to integrate rare diseases into the United Nations (UN) Convention on the Rights of Persons with Disabilities (CRPD) based on the experience of IF.
6 November 2018
The SBH community has lost one of its exemplary members with the passing away of disability advocate Tom Baroch
25 October 2018
Today is the 7th World Spina Bifida and Hydrocephalus Day! Join the conversation on social media to help raise awareness!
28 June 2018
The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.
30 May 2018
To learn how the BethanyKids' Mobile Clinic operates in Kenya, you can now watch a short video documentary.
23 May 2018
IF fellow Rebecca Opetsi joined the so called Bridge CRPD-SDG training in Kampala, Uganda, to become a lead trainer herself.
4 January 2018
Smarter Futures is featured in the December 2017 issue of the Milling and Grain Magazine.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
