20 November 2025
In October 2025, IF marked 10 years of active engagement in the Bridge CRPD–SDGs initiative with a special anniversary meeting held in Bangkok.
26 September 2025
Join us for the 31st International Conference on Spina Bifida and Hydrocephalus October 15–17, 2026 in Montreal, Canada. You are warmly invited to take part in this global gathering of experts, advocates, and community members. Register today and secure your place in the conference program!
15 July 2025
The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity.
24 May 2025
Building on our previous successes in rehabilitation and prevention through food fortification, IF is pleased to see the adoption of the WHA Resolution on Rare Diseases. As a global community, we can look forward to the forthcoming actions by Member States to translate its commitments into meaningful change.
15 April 2025
The Global Disability Summit (GDS) took place in Berlin from 2 to 3 April 2025, bringing together governments, civil society organisations, and international stakeholders to strengthen the inclusion of persons with disabilities in global development and humanitarian cooperation. The Global Disability Summit 2025 Concludes: IF Launches the Kuala Lumpur Declaration and Supports the Adoption of the Amman-Berlin Declaration on Global Disability Inclusion. Read the article here.
2 April 2025
This week the Global Disability Summit (GDS) takes place in Berlin Germany. The GDS represents a pivotal opportunity to advance disability inclusion on a global scale. The active involvement and participation of civil society, particularly Organisations of Persons with Disabilities (OPDs), is crucial to ensuring the Summit’s success.
18 February 2025
It is with sadness that we announce the passing of our founding father Björn Ründström. Björn was a pioneer of the International Federation for Spina Bifida and Hydrocephalus (IF) and will be greatly missed. Our heartfelt sympathy and thoughts are with his family and friends.
14 November 2024
The 30th International Conference on Spina Bifida and Hydrocephalus, convened in Kuala Lumpur from October 24th to 26th, resulted in a historic declaration that calls for global action to improve the prevention of Neural Tube Defects (NTDs) and ensure continuous, coordinated, and inclusive multidisciplinary care for individuals affected by spina bifida and /or hydrocephalus (SBH) throughout all stages of life, from childhood to adulthood. Join the action to co-sign the Kuala Lumpur Declaration.
13 June 2024
In this annual report 2023, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
