29 May 2019
IF, together with five other organisations working in disability rights, sent an open letter to the Romanian government expressing grave concerns about the violations of human rights of young persons with disabilities in Romanian institutional care.
15 October 2018
We congratulate on IF expert and friend Steven Schiff, who received a prestigious award for his work on predictive models for the personal treatment of infectious diseases, which lead to high risk of hydrocephalus.
3 October 2018
This Friday IF is going to Lisbon for a youth training called "My Rights: independent living, activism and participation for young people with spina bifida and/or hydrocephalus"!
25 September 2018
Check out our World Spina Bifida and Hydrocephalus Day 2018 social media toolkit to learn how you can help to raise awareness on October 25!
31 July 2018
IF member Spina Bifida Hydrocephalus Ireland (SBHI) has launched a powerful campaign film, The Fight of Our Lives, aimed at highlighting the need for equality for those living with disabilities.
17 July 2018
There are almost 3 months left until 2018 World Spina Bifida and Hydrocephalus Day and we need your support! Our main activity for 2018 WSBHD focuses on collecting 25 testimonies from people with SBH and their families, publishing one testimony per day starting on October 1st 2018.
28 June 2018
The IF General Assembly has approved our Annual Report 2017. The report highlights the progress of the organisation and the continuing development of activities, projects and workshops throughout the past 3 years.
15 June 2018
IF General Secretary made a statement at the 11th session of the Conference of the States Parties (COSP) to the Committee on the Rights of Persons with Disabilities (CRPD).
31 May 2018
European IF members came together in Sofia, Bulgaria, to discuss their priorities, achievements and concerns and receive the latest update on IF's plans and activities.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
