9 May 2019
Promoting inclusive ski lessons for youth with physical disabilities to learn new skills, build confidence, and improve health for all.
26 April 2019
This month Athina Giannoutsou joined our team! She will be IF's European Policy Officer, becoming the main liaison between our European members and the EU institutions.
25 April 2019
People born with spina bifida and hydrocephalus are at risk of accelerated ageing and need to be protected against financial hardship and institutionalisation
9 April 2019
Our Italian member organisation ASBI will coordinate a skiing project named “SKI for ALL”, part of the Erasmus+ Sport program and intended for children and young people with SBH or traumatic injuries.
8 April 2019
This years' World Health Day was focused on Universal Health Coverage (UHC). We joined the European Patients' Forum (EPF) and six other patients organisations, asking together for UHC in Europe and all over the world!
14 March 2019
Yesterday 13th of March the European Accessibility Act was approved by the European Parliament. Even if there is still a long way to go, a first step towards creating a more accessible and inclusive Europe is done!
11 March 2019
It's time to approve the Work-Life Balance Directive! Now that a first important step in the right direction has been taken, IF joins COFACE Families Europe and 11 other NGOs in calling for a swift adoption of the directive.
1 March 2019
At the end of May we are all called to vote for the European elections 2019 and IF strongly encourages European people with SBH to vote. Let's make make sure that the EU will become an inclusive society for all!
28 February 2019
For this year Rare Disease Day we invite you to join us in raising awareness and spreading the voice about rare diseases, such as spina bifida and hydrocephalus!
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Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
