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Raising awareness

Fostering inclusion, respect, and stronger rights for persons with Spina Bifida and Hydrocephalus through awareness-raising.

Community Building

Building bridges and empowering national Spina Bifida and Hydrocephalus associations to advocate for our rights.

International solidarity

Promoting prevention and lifelong care for people with Spina Bifida and Hydrocephalus and their families in developing countries.

International Conferences

Bringing together health professionals, researchers, policy makers, and individuals living with Spina Bifida and Hydrocephalus.