Our work

Advancing the rights of persons with Spina Bifida and Hydrocephalus and their families around the world.

Prevention

Tackling the primary prevention of neural tube defects (NTDs) and hydrocephalus as a united global community.

Right to health

Fighting for access to affordable multidisciplinary healthcare for people with Spina Bifida and Hydrocephalus and their families.

Raising awareness

Fostering inclusion, respect, and stronger rights for persons with Spina Bifida and Hydrocephalus through awareness-raising.

World SBH Day

Established in 2011 to celebrate achievements and accelerate global action for Spina Bifida and Hydrocephalus.

Human Rights

Protecting human rights and promoting living with dignity, access to essential services, and full participation in society.

Community Building

Building bridges and empowering national Spina Bifida and Hydrocephalus associations to advocate for our rights.

International solidarity

Promoting prevention and lifelong care for people with Spina Bifida and Hydrocephalus and their families in developing countries.

International Conferences

Bringing together health professionals, researchers, policy makers, and individuals living with Spina Bifida and Hydrocephalus.