12 November 2026
Being Heumann is a new Apple Original Film directed by Academy Award-winning filmmaker Siân Heder. Based on the life of disability rights activist Judy Heumann, the film tells the story of the historic 1977 Section 504 sit-in in San Francisco, when disabled activists joined forces to demand equal rights and challenge discrimination. Starring Ruth Madeley and Mark Ruffalo, the film brings an important chapter of disability rights history to the screen. It premieres globally on Apple TV on 13 November 2026, following its release in select cinemas.
For the International Federation for Spina Bifida and Hydrocephalus (IFSBH), the film has a particular significance. Ruth Madeley, a British actor with spina bifida, plays Judy Heumann. She is also a member of IFSBH’s Board of Directors.
Her role brings the experience and representation of someone with spina bifida into a story about the wider disability rights movement. It is a reminder that people with spina bifida and hydrocephalus are part of this movement and must be visible in its stories, leadership and advocacy.
Representation matters. Seeing people with disabilities in leading roles, both on and off screen, helps challenge stereotypes, broaden perceptions and ensure that different disability experiences are recognised. Equally important is ensuring that persons with disabilities are not simply represented, but are actively shaping the conversations and decisions that affect lives.
Judy Heumann’s legacy reminds us of the power of collective action and self-advocacy. These principles remain central to IFSBH’s work: bringing together people with spina bifida and hydrocephalus, fostering leadership and advocating for rights, inclusion and equal participation in society.
The disability rights movement is stronger when all voices are heard and all experiences are represented. As Being Heumann reaches audiences, it is an opportunity to recognise the contributions of people with SBH and reaffirm its role in shaping the wider movement.
Discover more: Read the Forbes article about Being Heumann and its significance for the disability rights movement.
Being Heumann opens in select cinemas on 6 November 2026 and will be available globally on Apple TV from 13 November 2026.
