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IF expresses concerns in response to UNICEF Report: “Every Child ALIVE”

The rights of newborns with birth defects and disabilities need to be protected too, to safeguard their lives and offer them the opportunity to thrive.

IF response to the Special Rapporteur on the rights of persons with disabilities

What does it take for persons with Spina Bifida and Hydrocephalus to reach the highest attainable standard of health?

IF joined the kick-off meeting of the SkiXAll camp

Raising awareness through a joint programme to promote the inclusion of young people with disabilities in mainstream sports.

Brain Awareness Week 2018

IF joins the call of the Dana Foundation for more brain research and share information to reduce the risks of Hydrocephalus.

Join us for the IF 28th International Conference in New Delhi, India

For the first time, IF will hold its annual international conference in South-East Asia, from Friday August 10 to Sunday August 12, 2018.

IF ERN session: How can your association work with healthcare providers?

IF organised a joint session for representatives of its European member associations and a group of SBH clinicians

Comparing endoscopic treatment and shunting for infant Hydrocephalus in Uganda

New study looks at the differences between two groups of babies treated for Hydrocephalus either by shunt or ETV.

10.000 surgeries since 2011!

IF is very pleased to hear that our partner CURE Hydrocephalus and Spina Bifida (CHSB) is celebrating a milestone

ICBD2017 highlights the importance of parents-patients organisations

8th International Conference on Birth Defects and Disabilities in the Developing World