23 June 2022
IF Annual Report 2021 highlights all of IF activities and achievements of the past year. The year 2021 was an active one with many activities and challenges. Some of the activities were affected by the COVID-19 pandemic. Therefore, IF organised its activities in a digital format. These activities such as an escape room meeting, training opportunities, international awareness days, and the IF conference for persons with SBH on multidisciplinary care were well-received. Here, in this annual report 2021, the actions achieved for human rights, primary prevention, optimising management and care, raising awareness, as well as international solidarity are highlighted.
27 October 2021
The side-event “From Traditional to Digital – Unlock Your Digital Communication”, taking place on October 19 2021, was the first event organised by the International Federation for Spina Bifida and Hydrocephalus (IF) exclusively for Member Associations’ Communications persons.
6 October 2021
On October 25th 2021, the International Federation for Spina Bifida and Hydrocephalus together with worldwide members will celebrate the World Spina Bifida and Hydrocephalus Day 2021 (WSBHD21) under the theme “Unlock Your Rights to Health”. IF facilitates dialogues and exchanges of best practices among IF Member Associations around the world to optimise the dissemination of information and campaigns on digital platforms. Especially for the WSBHD21, IF organises a side event on Communication: ‘From Traditional to Digital - Unlock Your Digital Communication’ to which all Communications Coordinator of Member Associations are exclusively invited.
6 July 2021
Cato Lie is the new President of IF - The International Federation for Spina Bifida and Hydrocephalus. He succeeds the former president Elena Zappoli from the Asociación para Espina Bifida e Hidrocefalia (APEBI) in Argentina.
2 November 2020
IF reflects on the WSBHD 2020 - The World Spina Bifida and Hydrocephalus Day (WSBHD) on October 25 is a very special highlight on our International agenda. It gives us the opportunity to raise awareness on SBH and share our stories with our stakeholders.
2 November 2020
Participate in the 1st edition of the photo contest dedicated to the topic of human rights organized by IF and ASBI Italy. The photo contest is open to everyone and has no age limits. Prizes will be awarded to the first 3 classified.
25 October 2020
Join the 2020 World Spina Bifida and Hydrocephalus Day celebrations!
21 April 2020
We warmly welcome Verónica, our new Administration Officer, to the IF team! She will be available to help you with any logistical and administrative issues. Thank you and welcome, Verónica!
3 March 2020
Join us for World Birth Defects Day 2020 and take part in the I CARE campaign!
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
Get quarterly updates about all matters relevant to Spina Bifida and Hydrocephalus.
