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Webinar: Living with Spina Bifida: Daily Challenges & Opportunities

Description

Webinar: Living with Spina Bifida: Daily Challenges & Opportunities

Presented by: Mariana Koshmaniuk & Volyk Anton, and moderated by Dr. Sylvia Roozen & Dr. Natalya Zymak

Summary: The EU-Ukraine Webinar on Spinal Dysraphisms was presented on Thursday 15th May 2025 and focuses on the daily challenges faced by individuals living with spina bifida.

It is presented by Mariana Koshmaniuk, founder and head of the NGO Association of Parents whose Children have Spina Bifida and Hydrocephalus “Lights of spirit”, and Anton Volyk​, a member of the “Lights of spirit” youth group.

The webinar was moderated by Dr. Sylvia Roozen and Dr. Natalya Zymak. and discussion focused on questions from the Ukrainian patients association to Prof. Giovanni Mosiello and Dr. Giuseppe Masnata.

If you were unable to attend the event, here is the link to the YouTube recording / Якщо ви не змогли взяти участь у події, ось посилання на запис YouTube: https://youtu.be/6LE3nwGXoSo