8 October 2026
How does mental health change throughout life when living with spina bifida and hydrocephalus (SBH)? To mark the International Day of Older Persons and World Mental Health Day, the IF International Adult Working Group SBH invites the global SBH community to a conversation about mental wellbeing across the lifespan.
Living with SBH is a lifelong experience, and mental health can be influenced by different stages of life, changing circumstances, healthcare experiences, relationships, independence, ageing and access to support.
This webinar will bring together voices from the IF Youth Group and Adult Working Group to share personal experiences, reflect on changes across different life stages and discuss what can help people protect and strengthen their mental wellbeing.
The conversation will also connect with the 2026 World Mental Health Day theme, “Lived experiences heard: real voices, real change”, highlighting the importance of listening to lived experience and ensuring that those experiences help shape the support, services and decisions that affect people’s lives.
The webinar will also highlight the Living with SBH – Stories of Lived Experiences catalogue developed by the IF International Adult Working Group SBH, bringing together real stories and experiences from people living with SBH.
Whether you are a person living with SBH, a family member, caregiver, healthcare professional, organisation or ally, you are welcome to join this global conversation.
Want to help share the conversation in your own community?
The Mental Health & Lived Experiences Campaign Toolkit includes campaign messages, information about the catalogue, conversation starters, ready-to-use social media content and campaign visuals.
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