IF ANNUAL REPORT 2024 IS NOW AVAILABLE!

The International Federation for Spina Bifida and Hydrocephalus (IF) is honoured to collaborate with our dedicated members and partners worldwide, all focused on improving the lives of individuals with Spina Bifida and Hydrocephalus (SBH) and their families. In light of the challenges faced by our SBH community, it is essential to optimise the use of our limited resources.

The 2024 Annual Report highlights significant achievements in advancing human rights, primary prevention, optimising care, raising awareness, and fostering international solidarity. A major milestone was the 30th International Conference on Spina Bifida and Hydrocephalus in Kuala Lumpur, Malaysia, which focused on bridging gaps in healthcare and prevention through a community-centred, multidisciplinary approach. The conference encouraged meaningful interactions among healthcare professionals, researchers, individuals with SBH, families, and scholars. It featured a range of sessions on topics such as mobility, psychological health, advocacy, and wellness, with a special focus on local SBH associations and their initiatives. The collective impact of the SBH community continues to inspire us!

Additional achievements in 2024 include engaging our community through informative webinars on international awareness-raising days such as the World Folic Acid Awareness Week (WFAAW24) and a webinar on mental health. The IF statements on ‘Technologies and Accessibility in Education’ and ‘Mental Health in Focus’, along with several consultations and scientific publications, reinforced our position on critical issues. To strengthen global ties, the twinning between the EU and Ukraine expanded our collaborative network. Additionally, we partnered on events like the World Birth Defect Day (WBDD) webinar, the WHA77 side event, and a youth meeting that united five youth groups from across borders.

IF is profoundly grateful for the unwavering support and active participation of our members and partners. We sincerely thank everyone who has contributed to our work, including the chairs, standing committee members, and our volunteers.

Reflecting on the many opportunities and initiatives of the past year, we are excited to make 2025 another year of progress alongside you!

Download the IF Annual Report 2024 here

You can find the Financial Report 2024 here.