IF Webinar Getting Older, Living Better: Best Practices for Ageing with Spina Bifida and Hydrocephalus

Ageing is a natural part of life, but for individuals living with Spina Bifida and Hydrocephalus (SBH), it can come with unique challenges and considerations. To address these challenges and promote a better quality of life for those ageing with SBH, the International Federation for Spina Bifida and Hydrocephalus (IF) is hosting an enlightening webinar on Sunday, October 1, 2023, in commemoration of the International Day of Older Persons.

Background

In recent years, members of the IF Working Group on Ageing with SBH have emphasised the importance of raising awareness about ageing with Spina Bifida and Hydrocephalus (SBH). Ageing is a natural part of life, but for individuals living with SBH, it can come with unique challenges and considerations. To address these challenges and promote a better quality of life for those ageing with SBH, the working group has recently published an insightful and comprehensive report “Ageing With Spina Bifida and Hydrocephalus: An Overview of Best Practices Around the World”. This report delves into the practices, strategies, and approaches adopted on a country level to support individuals with SBH as they navigate the challenges associated with the ageing process. The report highlights successful initiatives, innovative solutions, lessons learned from different parts of the world, and key recommendations. 

Webinar description 

The upcoming webinar will be organised by the IF Working on Ageing with SBH on October 1, as part of the International Day of Older Persons, focused on discussing best practices for the ageing Spina Bifida and Hydrocephalus community. The webinar aims to provide a platform for the ageing SBH community to share insights, discuss the findings of the report, and engage in meaningful conversations about the unique needs and opportunities for the ageing SBH community. This webinar intends to bring together individuals with SBH and their caregivers. By fostering a collaborative environment, the webinar aims to catalyse actionable efforts that enhance the quality of life for individuals ageing with Spina Bifida and Hydrocephalus.

Date: 1 October 2023, in commemoration of the International Day of Older Persons
Time: 15:00 PM CEST
Duration: 2 hours
Location & platform: Online, ZOOM Webinar
Registration: bit.ly/AgeingSBHWebinar 

Agenda

The agenda of the webinar is as follows, time in CEST:
15:00 – 15:10 Words of Welcome & Introduction Panel
15:10 – 15:50 Session 1: Best Practices / Short talks by members
15:50 – 16:00 Short break
16:00 – 16:40 Session 2: Discussion & Break out sessions
16:40 – 16:55 Plenary Discussions
16:55 – 17:00 Closing

Key Objectives

• To spread awareness about existing initiatives and allow the transfer of detailed information to others who might want to do something similar
• To give the ageing SBH community the opportunity to discuss unmet needs and  explore potential solutions

Join us on October 1, 2023, for this vital webinar, “Getting Older, Living Better: Best Practices for Ageing with Spina Bifida and Hydrocephalus”. Together, we can share experiences, discuss unmet needs and explore potential solutions together. Don’t miss this opportunity to be part of a meaningful conversation!