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GUATEMALA
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IF Statement on Strengthening Rehabilitation in Health Systems for persons with Spina Bifida and Hydrocephalus
IF Statement on Strengthening Rehabilitation in Health Systems for persons with Spina Bifida and Hydrocephalus With a new IF statement, the International Federation for Spina Bifida and Hydrocephalus (IF) stands… -
IF Secretary General advocates for rare diseases at UN
25 February 2019 // On 20 February, IF Secretary General was at the Microsoft Offices Headquarters in New York for the Annual Meeting of Rare Diseases International, where he gave… -
IF, HKI, and FFI renew the Smarter Futures partnership with Nouryon
31 January 2019 // 2019 marks the 10-year anniversary of the Smarter Futures partnership inΒ which Nouryon collaborates with theΒ International Federation for Spina Bifida and Hydrocephalus, Helen Keller International, and the… -
WORLD BIRTH DEFECTS DAY 2023
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EU SURVEY STUDY: INVITATION FOR PARTICIPATION OF FAMILIES OF SBH ASSOCIATIONS
Background There is a unique opportunity for the spina bifida and hydrocephalus associations to have a direct influence to improve the European Association of Urology Paediatric Urology Guidelines for care… -
IF Human Rights and Advocacy Training for Youth with SBH – Accessibility in Focus
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IFβs statement at the 11th Conference of States Parties to the CRPD
14 June 2018 // This week, IF has been present at the 11th session of the Conference of the States Parties (COSP) to the Committee on the Rights of Persons… -
CALL FOR ABSTRACTS – 29th International Conference on Spina Bifida & Hydrocephalus “Diverse Needs, Same Rights”
IF invites you to attend and present your work during the upcoming 29th International Conference on Spina Bifida and Hydrocephalus. Not only the Conference is organised in order to share… -
IF Membership Guide 2021
The new IF Membership Guide is ready! As approved in the last IF General Assembly in Ghent, we launch the new membership structure! It includes more transparency about IFβs network…